By Nancy Chiaravalloti, PhD, Denise Krch, PhD, and Andrea Gagliano, MS TBI researchers at Kessler Foundation
According to the Centers for Disease Control, at least 5.3 million Americans need long-term or lifelong help with their activities of daily living as a result of traumatic brain injury (TBI). Their families are often their primary custodians. With caregiving comes considerable physical and emotional burdens and a decline in quality of life. Unfortunately, the voices of caregivers are often lost in the midst of caring for the individuals with TBI.
How big is the problem? Approximately 1.4 million TBIs occur each year with 80,000 to 90,000 new persons who need ongoing care. For 17% of them, their disabilities are moderate to severe. The impact is devastating to the