Kessler Foundation Receives Grants to Study Health Disparities in People with Disabilities

2011-11-26 13:21:13 FOR IMMEDIATE RELEASE

 

Grants Totalling $296,261 fund study of impact of cultural factors on health-related quality of life

West Orange, NJ. November 23, 2011. Kessler Foundation received two government grants to study the impact of culture, race/ethnicity, and socioeconomic status on the rehabilitation and reintegration of people with spinal cord injury. The grants totalling $296,261 were awarded to Denise Fyffe, PhD, a research scientist in the Spinal Cord Injury/Outcomes & Assessment Laboratories. Dr. Fyffe, a clinical psychologist, is an expert in health disparities in underserved populations including the elderly and the disabled.

“Dr. Fyffe’s research expands our expertise in spinal cord injury research,” said Trevor Dyson-Hudson, MD, interim director of Spinal Cord Injury Research at Kessler Foundation, “and will contribute to a higher standard of care for all people with spinal cord injury.”

The  2-year Research Supplement to Promote Diversity in Health-related Research for $266,261 was awarded by the National Institute of Arthritis, Musculoskeletal, and Skin Diseases . Dr. Fyffe will study the impact of culture on perceived health-related quality of life among children and young adults with disabilities using the Patient-Reported Outcomes Measurement Information System (PROMIS).  The PROMIS project is a cooperative network of outcome scientists from seven institutions funded under the NIH Roadmap for Medical Research Initiative.  This award is a supplement to Drs. Alan Jette and David Tulsky’s project,  “PROs (Patient Reported Outcomes) for Children and Young Adults with Disabilities”.

This grant enables Dr. Fyffe to enhance her expertise in rehabilitation medicine, outcomes measurement, psychometric theory and practice, and cultural adaptation of measurement instruments. “I am very excited for this opportunity to examine the cultural sensitivity of the PROMIS quality of life that is being developed for disabled groups,” said Dr. Fyffe.

Dr. Fyffe also was awarded $30,000 for a pilot project, “Predictors of functional disparities among individuals living with spinal cord injury.” Using data from the National Spinal Cord Injury Statistical Center database, Dr. Fyffe will investigate social, cultural and clinical factors associated with poor functional outcomes in people with spinal cord injury. This collaborative project is funded through the Center for Rehabilitation Research Using Large Data Sets (CRRLD) Pilot Project Program. Dr. Fyffe is working with the CRRLD director Kenneth Ottenbacher, PhD, OTR  and Anne Deutsch, PhD, RN from the Rehabilitation Institute of Chicago, Consortium PI/Director Technique Development.

 The CRRLD comprises a consortium of investigators at the University of Texas Medical Branch, Cornell University, the Rehabilitation Institute of Chicago and the Uniform Data System for Medical Rehabilitation (Buffalo, NY). The program is funded by the National Institutes of Health – National Center for Medical Rehabilitation Research in the National Institute of Child Health and Human Development and the National Institute of Neurological Disorders and Stroke The goal of the Center is to build rehabilitation research capacity by increasing the quantity and quality of rehabilitation outcomes research using large administrative and research datasets.

“This award provides  the opportunity to bridge my previous work in health disparities, obtain the conceptual and methodological expertise needed to conduct research using large databases, and apply my knowledge to a new study population in rehabilitation.” Explained Dr. Fyffe.

About Kessler Foundation

Kessler Foundation is the largest public charity in the field of disability.  Kessler Foundation Research Center advances care through rehabilitation research in its six specialized laboratories under the leadership of noted research directors. Research focuses on improving function and quality of life for persons with injuries of the spinal cord and brain, stroke, multiple sclerosis, and other chronic neurological conditions. Kessler Foundation Program Center fosters new approaches to the persistently high rates of unemployment among people disabled by injury or disease. Targeted grant making funds promising programs across the nation. Veterans of Iraq and Afghanistan, people recovering from catastrophic injuries and stroke, and young adults striving for independence are among the thousands of people finding jobs and training for careers as a result of the commitment of Kessler Foundation.

Contact: Carolann Murphy, PA; 973.324.8382; [email protected]

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About nTIDE Updates
National Trends in Disability Employment (nTIDE) is a joint project of Kessler Foundation and the University of New Hampshire Institute on Disability. The nTIDE team closely monitors the job numbers, issuing semi-monthly reports that track the impact of economic shifts on employment for people with and without disabilities. As the effect of the COVID-19 pandemic continues to wane and inflation persistently rises, the nTIDE team has superseded its mid-month COVID Update to a “Deeper Dive” into the BLS data for people with disabilities. The statistics in the nTIDE are based on BLS numbers but are not identical. They are customized by UNH to combine the statistics for men and women of working age (16- 64). nTIDE is funded by the National Institute on Disability, Independent Living and Rehabilitation Research (NIDILRR; 90RTGE0005) and Kessler Foundation. Each nTIDE release is followed by an nTIDE Lunch & Learn online webinar. This live broadcast, hosted via Zoom Webinar, offers attendees Q&A on the latest nTIDE findings, provides news, updates from the field, and features invited panelists who discuss current disability-related findings and events.

About the Institute on Disability at the University of New Hampshire
The Institute on Disability at the University of New Hampshire was established in 1987 to provide a university-based focus for the improvement of knowledge, policies, and practices related to the lives of persons with disabilities and their families. For information on the Intitute’s NIDILRR-funded Rehabilitation Research and Training Center on Disability Statistics and Demographics (StatsRRTC), visit ResearchOnDisability.org.

About Kessler Foundation
Kessler Foundation, a major nonprofit organization in the field of disability, is a global leader in rehabilitation research. Our scientists seek to improve cognition, mobility, and long-term outcomes, including employment, for adults and children with neurological and developmental disabilities of the brain and spinal cord including traumatic brain injury, spinal cord injury, stroke, multiple sclerosis, and autism. Kessler Foundation also leads the nation in funding innovative programs that expand opportunities for employment for people with disabilities. KesslerFoundation.org.

For more information, contact:
Deb Hauss, [email protected]

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