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Stroke & VR, Cancer & Fatigue, TBI & Resources

Dr. Michael Stubblefield speaking at the 3rd Annual Cancer Conference

 

Here's what's been Trending@KesslerFdn lately. (Sorry, got a little ampersand happy this week.)

Stroke & VR

Woman putting on VR headset with help from another womanI recorded a podcast with Dr. Peggy Chen to be posted later this month. Peggy is a senior research scientist in the Center for Stroke Rehabilitation Research at Kessler Foundation. Her story of how she got from Taiwan to Penn State to Kessler is fascinating. But maybe even better, she let me and Nicky, our social media specialist (Nicky and Peggy pictured), try out the virtual reality games she's building to help stroke survivors. She is just in the testing phase, but we did get to play three games. Dr. Chen calls them games too. She thinks gamifying the repetitive parts of rehab will keep the patients engaged.

You can't full grasp how real VR feels until you've done it. You wear just the goggles. The system tracks your hand movements. These games are like being dropped into a 360-degree cartoon world where you use your IRL hand ("in real life" for those without middle schoolers at home) to point and touch. Each game is meticulously designed to figure out the best rehab for damaged cause by stroke and the resulting spatial neglect. Dr. Chen choose an animated world over something more realistic because she wanted it to be fun. And it is.That's all I can say about the games while they are in this top secret phase. This project began almost two years ago thanks to a grant from National Institute on Disability, Independent Living and Rehabilitation Research

Cancer & Fatigue

Dr. Michael Stubblefield (pictured at the top of this post) hosted the event Jody, our creative producer, and I went to last Thursday night at Kessler Institute for Rehabilitation. It was their 3rd Annual Cancer Conference titled Beyond Rest: A Rehabilitative Approach to Managing Cancer-Related Fatigue. (This too is a future podcast.) I didn't know that cancer-related fatigue can start during treatment, maybe even before treatment, and last for years after remission. Kessler Institute for Rehabilitation is one of 1,600-plus outpatient centers offering a program called ReVital. The program provides individuals with the tools they need to take control of their pain, fatigue, and decreased activity levels. The rehab therapist, who attended in force, are on the front lines of getting patients these tools.

At Kessler Foundation we are doing research to help find the best tools. We have a study open to volunteers right now called Effect of Exercise Training on Breast Cancer-Related Weakness.

TBI & Resources

If you are effect by TBI (consumers, caregivers, friends and family, rehab professional), we are holding a consumer conference for people living with a brain injury in September. It's called: Moving Forward: Improving Emotional, Physical, and Cognitive Health After Brain Injury. It's free.

Here's the Foundation's Center for TBI Research.

There is a Model Systems Knowledge Translation Center (very one calls it MSKTC should it ever come up) for SCI and TBI. (There's also one for burn injury.) The MSKTC is a national center that ensures that useful health information gets to the people who need it. There are tons of videos, slideshows, and fact sheets. The Foundation is one of 16 in the TBI model system and one of 14 in SCI.

Odds and Ends

Supermarket shopping cart built for people with disabilitiesSome things being passed around the office this week:

And my favorite story of the week has to be about a wheelchair basketball player from the UK. It's just under three minutes long and well worth the listen.

BTW, you may have noticed a lot of mentions of podcasts you can enjoy. Watch this space for the latest ones.

Submitted by rgerth on Fri, 08/09/2019 - 12:03