MSKTC provides plain-language SCI factsheets, videos, and research-based information helpful for understanding health, recovery, and long-term living with SCI.
Connects people with SCI and wheelchair users to practical resources, peer-informed information, and advocacy support.
SCIRE translates SCI research into accessible information for the community. Useful for people who want evidence-based guidance without reading technical journal articles.
A key entry point for disability-related information in New Jersey. Helpful for locating state programs, publications, and referral support across NJ.
A free, dedicated resource for individuals with spinal cord injury and their families. Navigators work one-on-one from hospital to home, offering guidance on healthcare transitions, home accessibility, benefits, and community resources.
Offers factsheets, support options, multilingual resources, and help from information specialists.
Centers for Independent Living are advocacy organizations run by and for people with disabilities in local communities. CILs provide peer support, independent living skills training, information and referrals.
Inner Strength is a monthly virtual gathering for people with spinal cord injury and their loved ones. This welcoming space offers connection, shared experience, and meaningful conversation focused on emotional and social well‑being.
Additional Resources
- Administration for Community Living. Services and supports provided primarily by networks of community-based organizations, and with investments in research, education, and innovation.
- Facing Disability. Shares real-life videos and stories from people and families adjusting to SCI. Particularly helpful for newly injured individuals and caregivers.
- New Mobility. A long-running publication covering wheelchair life, accessibility, travel, gear, and disability culture from lived experience.
- North American Spinal Cord Injury Consortium. Supports community engagement and collaboration across the SCI field, with resources intended to improve quality of life and access to information.
- SCI Info Pages. A broad collection of SCI-related information gathered for consumers, including health, equipment, and daily living topics.
- Easterseals. Provides support services for children and adults, including vocational training, transportation assistance, day services, and early intervention.
- Tri-State Advocacy Project. Helps with practical issues such as home care, legal advocacy, transportation, and service navigation.
Assures the opportunity for individuals with developmental disabilities to receive quality services and supports.
PASP provides routine non-medical personal assistance for eligible adults with permanent physical disabilities who are working, volunteering, or attending school.
PPP allows eligible NJ FamilyCare or Medicaid members to direct their own personal care services and remain active in the community.
Provides a directory of spinal cord injury support groups in New Jersey.
Supports family members and hired caregivers with hands-on skills training, video resources, and peer support. The free program offers in-home training for New Jersey residents and online education and support across the U.S.
Additional Resources
- Centers for Independent Living. Consumer-driven community organizations that offer peer support, advocacy, skills training, and referral services.
- Disability Rights New Jersey. Provides disability rights advocacy, legal information, and systems-level support in New Jersey.
- Managed Long Term Services and Supports. Helps eligible New Jersey residents access long-term supports, including community-based services that may reduce the need for institutional care.
- Register Ready: New Jersey Special Needs Registry. An emergency preparedness registry that can help first responders identify people with disabilities who may need assistance during disasters.
- Jersey Assistance for Community Caregiving (JACC). A New Jersey program that may help some residents remain in the community with support services in English and Spanish.
- Division of Developmental Disabilities New Jersey. Quick guide to quality services and support within New Jersey communities in English and Spanish.
- Division of Vocational Rehabilitation Services. Supports employment planning and services for eligible New Jersey residents with disabilities.
Helps users understand how employment affects benefits, health coverage, and income.
The primary federal source for Supplemental Security Income and Social Security Disability Insurance.
A program that allows many working people with disabilities to keep Medicaid coverage even when earnings or assets could make them ineligible.
Lists state vocational rehabilitation agencies that may help with employment goals, training, and work-related supports.
Tax-advantaged savings accounts that allow people with disabilities (SSI and SSDI) to save money without affecting eligibility for federal benefit programs.
Additional Resources
- SCI Cost Calculator. An SCI-focused tool from Praxis Spinal Cord Institute that estimates healthcare and lifetime costs related to SCI.
- Rehabilitation Services Administration. Directory of state vocational rehabilitation agencies across the United States.
- Ticket to Work. Explains employment support for SSI and SSDI beneficiaries, including work incentives and employment network options.
- Supplemental Security Income (SSI). Monthly payments for eligible people with disabilities and older adults with limited income and resources.
- Trial Work Period. Explains how SSDI beneficiaries may test work without immediately losing benefits.
- Section 1619(b). Medicaid protection for some SSI beneficiaries whose cash payments stop because of earnings.
- Low Income Home Energy Assistance. LIHEAP helps eligible households with heating and utility costs. The linked resource is New Jersey-specific, but similar programs exist in other states.
- Be Perfect Foundation. Offers support that may help offset some costs associated with paralysis-related needs, including scholarships and assistance programs.
- Impairment-Related Work Expenses. Describes how some disability-related work expenses may be excluded when Social Security evaluates earnings.
- Help Hope Live. A medical fundraising platform that helps people raise funds for approved expenses.
- Honda Customer Mobility Assistance. Provides reimbursement support for eligible vehicle modifications on qualifying Honda vehicles.
Paratransit service for eligible New Jersey riders who cannot use regular fixed-route transit because of disability.
A New Jersey transportation resource that may include wheelchair-accessible options depending on service and location.
County-based accessible transportation programs can fill gaps not covered by other transit options, though eligibility and services vary by county.
Provides wheelchair-accessible vehicle sales, rentals, service, and mobility equipment.
Additional Resources
- Access-A-Ride (MTA). Paratransit service for eligible riders in the MTA region who cannot use accessible public transportation.
- Drive Master Mobility. Offers van rentals and other mobility transportation services.
- Fun Truck 'N Mobility. A New Jersey-based mobility transportation provider with adapted vehicle options.
- Modivcare. (aka LogistiCare) Provides non-emergency medical transportation services for some Medicaid members and health plans.
- U.S. Department of Transportation Air Travel Consumer Information. Useful for understanding rights and options related to accessible air travel.
- Wheelchair Getaways. Offers wheelchair-accessible van rentals for travel and daily use.
ASIA helps consumers find SCI-specific healthcare guidance and resources.
NCHPAD offers health promotion and physical activity resources for people with disabilities, including practical wellness tools.
This course was designed by Kessler Foundation to help the training of personal care assistants who work with clients with SCI. The goal is to increase knowledge about SCI, improve communication, and enhance quality of care.
Supports family members and hired caregivers with hands-on skills training, video resources, and peer support. The program offers in-home training for New Jersey residents and online education and support across the U.S.
Connect to an experienced SCI caregiver who can listen and provide support. Communicate with your mentor by phone, email, or text. Mentors are trained through the Christopher & Dana Reeve Foundation's Peer & Family Support Program.
Provides personalized wheelchairs, seating systems, and adaptive equipment intended to support independence and mobility.
Offers refurbished and sanitized durable medical equipment at lower cost, with a New Jersey location highlighted in the source materials.
Additional Resources
- Caregiver Action Network. Offers practical help for family caregivers, including planning tools, guidance, and education.
- National Alliance for Caregiving. Provides caregiving information, advocacy, and policy-focused resources relevant to families and support partners.
- AARP Caregiving Resources. Consumer-friendly caregiving information on planning, support, and aging-related issues.
- Eldercare Locator. A national service that helps older adults and caregivers locate local supports.
- Meals on Wheels America. Connects users with community-based meal programs that may support nutrition and independent living.
- Inner Strength. Monthly virtual gathering offers connection, shared experience, and meaningful conversation for people with spinal cord injury and their loved ones.
Provides support for adaptive sports participation, including equipment funding, training, and community events.
Covers adaptive sports, recreation, lifestyle, and community news for people living with SCI and other disabilities.
Includes adaptive exercise and activity resources, with virtual options highlighted in the source materials.
Offers flight training scholarships for people with disabilities, supporting confidence, skill building, and self-reliance.
Provides adaptive boating and sailing opportunities for children and adults with disabilities in an inclusive way.
Additional resources
- Move United (formerly Disabled Sports USA). Connects people with adaptive sports and recreation programs across the United States.
- Stride Adaptive Sports. Provides adaptive sports opportunities and community programming.
- Paralympics. Useful for exploring adaptive sports pathways, athlete stories, and sport-specific information.
- Project Airtime. Offers free paragliding opportunities for people with disabilities.
Provides health care and related services for eligible veterans, including specialty care available through the VA system.
A leading source of advocacy, care-related information, and SCI publications for veterans and the wider SCI community.
Offers clinical practice guidelines plus consumer publications and educational materials on living well with SCI. Especially useful for veterans, but valuable to the broader SCI community.
Provides veterans with opportunities for health and healing through adaptive sports and therapeutic art programs.
Helps consumers search for SCI-related studies and learn more about research opportunities.
Explains what consumers should know about experimental SCI treatments and how to evaluate claims carefully.
Explore open research opportunities and see if joining feels right for you. When you participate, you help advance science and improve rehabilitative care. Your involvement is completely your choice.
Highlights SCI research programs and scientific work aimed at improving function, health, and quality of life.
Additional Resources
- Spinal Cord Injury Project at Rutgers. A New Jersey research resource with information about SCI-related scientific work and programs.
- United Spinal Work Readiness Resources. Supports employment readiness and work-related planning for wheelchair users and people with disabilities.
- SCIRE Professional Resources. Provides broader evidence summaries and professional resources related to SCI rehabilitation and health.
- American Spinal Injury Association.Provides educational resources for doctors caring for patients with spinal cord injuries as well as information and support resources for SCI caregivers.
- National Center on Health, Physical Activity, and Disability. Explore free health, wellness, and physical activity resources designed to support people with disabilities and promote inclusive communities.
