MSKTC provides plain-language TBI factsheets, videos, and research-based information helpful for understanding health, recovery, and long-term living with TBI.
A key entry point for disability-related information in New Jersey. Helpful for locating state programs, publications, and referral support across NJ.
Centers for Independent Living are advocacy organizations run by and for people with disabilities in local communities. CILs provide peer support, independent living skills training, information and referrals.
Features information on diagnosis and treatment geared toward TBI survivors, caregivers, and professionals.
Additional Resources
- Traumatic Brain Injury Research at Kessler Foundation. Explains how our research addresses real-world challenges after TBI in consumer-friendly language, including thinking skills, mobility, emotional well-being, fatigue, and community participation.
- Center for Traumatic Brain Injury Research at Kessler Foundation. Provides a deeper look at scientific investigations, laboratories, and areas of study for TBI clinicians, researchers, and partners
- TBI Recursos en Español. Spanish-language TBI resources from MSKTC for individuals with TBI and families who prefer information in Spanish.
PPP allows eligible NJ FamilyCare or Medicaid members to direct their own personal care services and remain active in the community.
PASP provides routine non-medical personal assistance for eligible adults with permanent physical disabilities who are working, volunteering, or attending school.
Supports employment planning and services for eligible New Jersey residents with disabilities.
BIANJ provides information, education, advocacy, and assistance in connecting individuals with brain injuries to resources. Family Helpline: 1.732.783.6172.
Additional Resources
- Centers for Independent Living. Consumer-driven community organizations that offer peer support, advocacy, skills training, and referral services.
- Disability Rights New Jersey. Provides disability rights advocacy, legal information, and systems-level support in New Jersey.
- NJ Traumatic Brain Injury Fund. Provides financial assistance for therapy, personal care, assistive technology, and home modifications for New Jersey residents whose insurance or personal resources are exhausted.
- Northern New Jersey Traumatic Brain Injury System. Federally funded, TBI Model System center of excellence offers elite research, inpatient/outpatient care, and continuum-of-care programs. Affiliated with Kessler Foundation / Kessler Institute for Rehabilitation.
- Opportunity Project. Millburn-based clubhouse program helps individuals with brain injury rebuild cognitive and vocational skills through structured community integration, social programs, and pre-vocational training.
- Richard West Assistive Technology Advocacy Center. Provides New Jersey residents access to assistive technology through advocacy, training, device demonstrations, short-term loans, and equipment reuse.
- Register Ready: New Jersey Special Needs Registry. An emergency preparedness registry that can help first responders identify people with disabilities who may need assistance during disasters.
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Tri-State Advocacy Project. Free service helps families navigate disability care, insurance benefits, Medicaid, Social Security, transportation, home care, and community services.
Learn about advocacy organizations run by and for people with disabilities in local communities. CILs provide peer support, independent living skills training, information, and referrals.
Premier resource to the acoustic neuroma community, informing, educating, and supporting those affected by an acoustic neuroma, also called a vestibular schwannoma.
Offers prevention information, public health statistics on TBI and concussion, including articles, fact sheets, statistics, and support resources.
Provides disability and rehabilitation research information and referrals.
Additional Resources
- Administration for Community Living. Services and supports provided primarily by networks of community-based organizations, and with investments in research, education, and innovation.
- Easterseals. Provides support services for children and adults, including vocational training, transportation assistance, day services, and early intervention.
- National Institute of Neurological Disorders and Stroke. Provides patient and caregiver information, research updates, and educational resources on traumatic brain injury.
- PINK Concussions. Focuses heavily on brain injury in females, offering online support groups, expert resources, and research specific to women.
Helps users understand how employment affects benefits, health coverage, and income.
The primary federal source for Supplemental Security Income and Social Security Disability Insurance.
A program that allows many working people with disabilities to keep Medicaid coverage even when earnings or assets could make them ineligible.
Tax-advantaged savings accounts that allow people with disabilities (SSI and SSDI) to save money without affecting eligibility for federal benefit programs.
Offers detailed information about seeking employment after traumatic brain injury and guidance on workplace accommodations that can help employees with TBI succeed.
Additional Resources
- Rehabilitation Services Administration. Directory of state vocational rehabilitation agencies across the United States that may help with employment goals, training, and work-related supports.
- Ticket to Work. Explains employment support for SSI and SSDI beneficiaries, including work incentives and employment network options.
- Supplemental Security Income (SSI). Monthly payments for eligible people with disabilities and older adults with limited income and resources.
- Trial Work Period. Explains how SSDI beneficiaries may test work without immediately losing benefits.
- Section 1619(b). Medicaid protection for some SSI beneficiaries whose cash payments stop because of earnings.
- Impairment-Related Work Expenses. Describes how some disability-related work expenses may be excluded when Social Security evaluates earnings.
- Help Hope Live. A medical fundraising platform that helps people raise funds for approved expenses.
Provides free and low-cost adaptive sport and recreation lessons in the Northeast, with programs for youth, adults, and Veterans with disabilities.
Nonprofit provides outdoor adaptive sports and recreation programs for children and adults with physical and cognitive disabilities and chronic illnesses.
Connects youth and adults with disabilities to adaptive sports and recreation opportunities through a national network of local programs.
Offers free programs for people with brain injury, and their caregivers, health professionals, yoga teachers, and people interested in brain health.
Provides outdoor recreation for individuals with limited mobility including paraplegia, quadriplegia, limb loss, and stroke. Experiences are hosted in Ellenville, NY, and throughout the Northeast.
Provides home modification services for New Jersey families seeking improved accessibility and safety in residential spaces.
Features informational articles, personal stories and blogs, expert Q&A sessions, and a resource directory for military service members, veterans, or anyone with TBI or PTSD.
Offers plain-language education and downloadable resources to help service members and veterans, patients, and families learn about TBI, including clinical tools, educational resources, podcasts, and research information.
Connects caregivers of veterans enrolled in VA healthcare with local caregiver support teams and services.
Provides caregiving tips for family members and caregivers supporting Veterans with TBI.
Provides veterans with opportunities for health and healing through adaptive sports and therapeutic art programs.
Raises awareness about the challenges some veterans, service members, and their families face, and invest in solutions to help support them.
Explore open research opportunities and see if joining feels right for you. When you participate, you help advance science and improve rehabilitative care. Kessler Foundation recruits volunteers with or without TBI.
Kessler Foundation highlights TBI research programs and scientific work aimed at improving function, health, and quality of life.
Kessler Foundation's published newsletter shares the latest news and research for people living with TBI and their families.
Allows consumers to search for TBI-related studies and learn more about research opportunities.
Additional Resources
- Facebook Page. Find new studies and breakthroughs from Kessler Foundation TBI researchers
- TBI Research Videos. Learn about targeted studies and interventions described in detail by guest speakers and Foundation research scientists, including our Brainstorm Virtual Speakers Series
- TBI Podcasts. Listen to consumer and professional presentations on the Kessler Foundation SoundCloud channel presented by our researchers and guest speakers
Provides information and support resources for caregivers and family members supporting someone after brain injury.
Offers practical information, educational guides, and direct support programs for friends, family members, and caregivers of brain injury survivors.
Offers information for caregivers, family members, and friends about caring for a loved one with TBI, including legal and financial guidance, workplace rights, support groups, and caregiver burnout.
Provides a Family Caregiver Toolbox, educational webinars, and online support communities.
NCHPAD offers health promotion and physical activity resources for people with disabilities, including practical wellness tools.
Additional Resources
- AARP Caregiving Resources. Consumer-friendly caregiving information on planning, support, and aging-related issues.
- Eldercare Locator. A national service that helps older adults and caregivers locate local supports.
- Well Spouse Association. Advocates for and addresses the needs of individuals caring for spouses or partners with chronic illnesses or disabilities through peer support and education.
