Caregiver Resilience: A Longitudinal Investigation (Model Systems Module)

Caregivers provide integral support to survivors, especially after hospital discharge. Concerns have been expressed that many survivors go home to family members who are ill-prepared to manage commonly encountered problems.20 Caregiving places a great burden on family members that is manifested in high rates of depression, anxiety, and somatic concerns.
Until recently, research on caregivers had focused on only the negative correlates of caregiving. A greater appreciation of strengths-based approaches in psychology mandates that we take a more holistic view of caregiving. Whereas there have been several studies exploring resilience among survivors of TBI, very little has been written about resilience in their caregivers. As with other types of illness, improving outcomes for persons with TBI may be predicated on the well-being of their support persons.21,22 Research to quantify and characterize the nature of caregivers’ resilience postinjury is a cornerstone to advancing the evidence base on adjustment after TBI.

6 months to 2 years

Inclusion Criteria

Caregivers age 18 and older, identified within six months postinjury by TBIMS NDB participants (survivors) will be included. Participants will include relatives, friends, or other acquaintances involved in providing care, support, or other meaningful assistance to the survivor. In cases where there is more than one caregiver available, first priority will be given to the caregiver who is providing the most care to the survivor. A script will be developed for data collectors, allowing them to better identify a single caregiver for each survivor.



Actively Recruiting