By Nancy Chiaravalloti, PhD, Denise Krch, PhD, and Andrea Gagliano, MS TBI researchers at Kessler Foundation
According to the Centers for Disease Control, at least 5.3 million Americans need long-term or lifelong help with their activities of daily living as a result of traumatic brain injury (TBI). Their families are often their primary custodians. With caregiving comes considerable physical and emotional burdens and a decline in quality of life. Unfortunately, the voices of caregivers are often lost in the midst of caring for the individuals with TBI.